Sunny Day in Massachusetts

Today marks the day before Elisha returns home to New England from his time out in Ohio with his many relatives that include Grammy Lou and Grandpa “B”. I am excited to see my boy, hug him, talk with him, hug him some more, hear of his great adventures of swimming, swimming & more swimming! I feel energetic today, and ready to face the time I have to lesson plan and run solo errands before my almost 6 year old returns! These past three weeks have been a gift to me.

I am grateful to my family for all of the many facets of help they have given me, and are giving me.
The outpouring of love and tangible help during this season in my life awes me.
This experience is curing me of my propensities to be cynical, for sure.

Wig Day

Okay, first good news! My CA125 (which is a type of blood test for ovarian cancer) has gone down. Since surgery it went from a whopping 306 to an 18. After chemo infusion # 1 it has traveled down to an 11. I am going for 0. The reality is: This number has to stay in the normal range for a few years…(5 or 6) to be deemed a cancer survivor-that is my understanding of the information my surgeon gave me. Wow, dastardly little cancer gargoyles hide and do strange things within a body. 0-35 is a normal range for a woman. I am so grateful today for the surgical team that took care of me on the 17th of April, and the chemo team henceforth.

So, today marks the day I become a “red head” for a season. I think I’ll go short-spiky red head verses a long flowing hair-do, but I will rely on divine inspiration when I see the “floor models”.
My scripture for the day today was: “But even the very hairs of your head are all numbered. Fear not therefore: you are of more value that many sparrows.” Luke 12:7
I laughed to myself about the hair metaphor in the scripture. I have a few left, and actually feel like I look like a gosling. God knows the number of hairs on my head, but it’s not a big count lately. Tufts of soft downy like hair on my very bald head are just hanging on, but I am guessing two weeks two days from this past infusion will be another session of “chao pelo”.
I thank God I still have my eyebrows and eyelashes, but it is my understanding that those will go, too. It will be an opportunity to get very creative with eyeliner. I have been wearing mascara since I was too young to wear it. A reprieve from it will be humbling. Okay, so I am off to the salon at MGH where they will help me with this wig thing. I am reminded of Uncle Harley Davison’s comments: “Hair is over-rated”.

Made it Through the bone-breaking flu-like symptoms of that Taxol chemo drug

I fared pretty well this time considering constipation was NOT an issue. Let me tell you the gift in that reality. Huge blessing. I chose to keep away from the stronger (and the medium) anti-nausea drugs, but ended up throwing up on Sunday night (or was that Monday morning…). It’s all kind of a hazy blurrr. The effect on day 3 is like having a flu, but not exactly. I cannot explain it. But for those of you that are praying for me, please intercede on day 3 of my chemo infusions… (The next day three will be July 12)

The nursing staff at MGH helped me via the phone line, and I ended up taking the “medium” anti-nausea pills just to get the nausea under control. It is a balance of letting my body accept the drugs to do their important work of killing the cancer, and enduring the side-effects. God is helping me every step of this way. (Psalm 93) He reigns over my life. I feel His presence even in the small moments of my daily life when I am trying to decide what is important to spend my low energy on. I know that I am now on the uphill climb back to an energy level that will allow me to function daily, and to gear up for the month’s work of literacy teaching to a group of emerging ninth graders. I am excited about teaching this summer. It’s part-time. It’s a provision. I love teaching, and facilitating better writing skills. The work takes place between July 1-31 from 8:00-12:00. I can do this with the grace of God, and some extremely detailed lesson planning. I believe it is a stepping stone to my employment for next year’s 2009/2010 academic year. No word yet on a new contract. I wait. Surrender. Wait more. I surrender more. So, this post is just to let all of you know that I am upward bound, and walking forward daily relying on His strength for today and hope for tomorrow.

Day After Chemo Infusion # 2

Good News! I slept well last night. I woke up semi-refreshed at 5:30. I dealt with the nausea with food, and did have to take a single pill this morning to counter the chemo affects! This is important to me! Constipation is officially a non-issue! I “went” first thing this morning. Ahhhhhhh…the “gift” of regularity. I could do a commercial as it related to this one- anti-nausea drug side affect to chemo treatments.

No more Zofran (the big anti-nausea drug)!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Don’t do: Decadron (steroid that counters an allergic reaction and helps Zofran work better)
Say no to Ativan (anti-nausea-chill pill used at night!)!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Stomp-a-zine Compazine (the medium anti-nausea drug)!!!!!!!!
No drugs for me, but the ones that thin my blood, and kill my cancer (and hair cells, and…yadadadadada-I will spare you those details) Yes, I officially look like a gosling (a baby goose) with a bit of hairs left on the top of my head. Jamie has agreed to do a “Mother & Son-Are-Bald portrait” at a professional studio with me-just to mark this milestone in my life photographically. As soon as the last strand leaves my head, I am booking a studio appointment.
I am serious about this project. Does everyone know Jamie makes a conscience choice to shave his head? He is a rare blue-eyed young man that can pull this look off well. He’s a beauty. I love my two boys soooooooooooooooooooooooo much. Well, one is a boy, Elisha, but the other has turned into a fine young man. Jamie will be 23 this July, and Elisha will be 6 this July. God has blessed me with two very unique first-borns. My rubies. I am grateful to have been given the calling to raise sons. Be well everyone. I am feeling well for today.

Chemo Infusion # 2 of 6 (like a long FAX)

I am here in the infusion room hooked up to the chemo IV cart.” I woke somehat refreshed despite the interupted sleep patterns of the “night before” chemo. I am feeling a slight buzz from the IV of Benadryl. Wooweeeeeeeee!
My nurse is so kind, efficient and a GREAT communicator of the processes I am now engaged in. I am sitting in what seems like a reclining lazyboy chair. The window overlooks the Charles River, and it is beautiful. It is a foggy and rainy day in Boston. My sweet neighbor Carol drove me into the Yawkey Building this morning. Well, I don’t mean she literally drove me into the building! She and her young son dropped me off there in front of the building. It was so nice having conversation with her during our 40 minute ride in-traffic was bumper to bumper, but the drive into town went by so nicely. People’s generous hearts are blessing me. I am full of gratitude for my family of origin that is stepping in to help me out of multi-faceted ways. The people of Abba’s House that I live with, Marlane, Jennie, Bertude, Josuha and even Jael (the black lab) are amazing me everyday with the love, prayers, humor, help and hugs!
I am enduring this regime well because of the grace of God. I am perservering through the unknown factors in my life about my next year’s employment because of the grace of God. I am letting go of the past because of the mercy and grace of God. I am looking forward to the hope of my future because of the peace and provision of God. My point is this: “I can do all things through Christ who strengthens me.” That’s my story.

Life is good with a good night’s sleep.

I slept soundly last night, and awoke early, but refreshed.

I am trying to lay my anxiety about the second chemo infusion at the cross of Jesus. Sometimes I must do this hourly. God has delivered me from my fears, but they rear their ugly head to entice me to focus on the the fear rather than God through my faith in Him. Yikes!
I am finishing my 2008/09 year well, as I prayed I would be able.
I am optimistic that I will have a position in the upcoming academic year in the same school system, but no word yet.
I surrender all outcomes to the Lord, and wait.
Waiting has never come too easy for me, but I am in a process in life now where I very well may become an expert at “waiting.” Sigh.
I am grateful for another day, and feel pretty good. Fatigue is a factor in my life now, but it is not the G-force fatigue that I have heard about, and have experienced once or twice since the first infusion.

Elisha

I really really really miss my little boy. It has been exactly one week now, and that seems enough, but I must accept this help from my wonderful family at this time. They are taking such good care of him. His days are filled with Grammy Lou & Grandpa B. Grammy’s 4 cats. A weekend away at a wonderful lodge in southern Ohio. Aunties and Uncles. (Aunt Laurie is taking such good care of him out at the “farm”.) Aunt Cathy and Uncle Dan and the shop, and their new puppy! Uncle Jonathan (Elisha doesn’t call him Jon, I hope.) and Aunt Laura. Cousin Jarrett and baseball! Erika and Levi-Megan, Nick, Jessie & Morgan-Brian and Gretchen and the twins in utero, Ricky and Lauren, Sweet Jenny. There are lots of cousins big and kind. More to come on Father’s Day-little Alessandro from Sicily is coming! Volleyball games. Good food & rests. Movies, I’m sure. Joshing with Uncle Jeff. etc.etc.etc. Knowing he is in such good hands and hearts makes the separation easier, but I really do miss him.-a lot.

However, this is not to say, I am enjoying the space and time I need to prayerfully gear up for chemo infusion # 2, and wind down my 2008/09 school year. I take long walks in the evening lately, and think that Elisha could be scooting along with me on his scooter as I walk. Big sigh.
Elisha will be six years old, but this short video clip was taken when he was not even 2 yet.
I miss my baby! I love the six year old emerging.
I am soooooooooooo grateful to God that my ovaries served a great purpose in this life:
Bringing the egg down those tubes that soon became Elisha.

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